The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2026 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 1 through June 30, 2026, we invite YOU—patients, caregivers, supporters, and advocates around the...
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to open nominations for two important annual honors that recognize individuals making a meaningful impact in the ECD community through medical awareness, advocacy, compassion, and service. Together, the Mark...
Rare Disease Day is observed every year on the last day of February to raise awareness for the millions of people worldwide living with rare diseases. ECDGA is proud to stand with individuals and families navigating rare diagnoses—offering support, education, and...
Reminder: Abstract Submissions Close February 1, 2026 The ECD Global Alliance invites clinicians, researchers, and medical professionals to submit abstracts for consideration at the 2026 ECDGA Medical Symposium, taking place on May 1, 2026, at the Marnix E. Heersink...
Created using the Donation Thermometer plugin https://wordpress.org/plugins/donation-thermometer/.$30,000.00$30,000.00Raised $30,000.00 towards the $30,000.00 target.100.00% A generous donor has stepped forward with an additional matching opportunity of up to $30,000....
Thanks to the generosity of our incredible community, we have officially reached our $90,000 End-of-Year Campaign matching goal. This is a tremendous achievement, and we are deeply grateful for every gift, message of support, and vote of confidence in our...
