“We are excited to welcome Mary as our new Executive Director and look forward to the energy, experience, and passion she brings to our mission and our community.” – Diane Schriner, President of the Board of Directors Leadership Announcement Mary Burgin is honored to...
Up to $60,000 USD is available for a two-year project advancing research into Erdheim-Chester Disease and related adult histiocytic disorders. The ECD Global Alliance is now accepting letters of intent for its Early Career Investigator Grant, a research funding...
As ECD Awareness Month comes to a close, we want to thank everyone who helped us share information, recognize symptoms, celebrate research, support families, and make Erdheim-Chester disease more visible. Every post shared, story told, and conversation started helps...
Advancing research begins with great ideas, and every important discovery starts with a first step. The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce that information about our upcoming Letters of Intent (LOI) application process will be...
This September, ECD Global Alliance will launch our most ambitious Erdheim-Chester Disease Awareness Month campaign to date. Built around the theme Know ECD. Change Lives., this month-long initiative is designed to increase awareness, encourage earlier recognition,...
Join us for the 2026 ECDGA Fun Run, Walk, or Roll happening June 1–30, 2026! This month-long community event is a fun and meaningful way to support individuals and families affected by Erdheim-Chester Disease. Participants can complete their miles anytime, anywhere;...
