by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
This Arizona restaurant fundraiser was a success, raising over $2,000 while spreading awareness of Erdheim-Chester disease! The Gabby’s Grill restaurant owners, Jim and Kelley Cabral, donated 25 percent of all receipts contributed during this one-night event. The...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
A Florida fundraiser was held in December 2017 by patient Iris Vagnini. She used her creative hobby of taking exceptional photos in her garden to create a desk calendar to raise funds for the ECDGA. The advertisement and sales of this product created an opportunity to...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
New York ECD patient, Mohammad Chowdhury, reached out to his network by sharing his story about living with ECD and the work of the ECDGA. He was able to reach his goal of $5,000 in one month! He was pleased with the results, “When I decided to let my friends and...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
The ECDGA held a small, local fundraiser in Louisiana. The event was a painting party where 44 attendees selected one of three pictures to paint. All supplies and painting help was provided for a fee of $30. There were items donated for a silent auction and door...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
Thank you to Alexa Lofaro for hosting and the 100+ community members that participated in this virtual walk/run event! This was a volunteer-led event created to raise research funds for the advancement of ECD patient care and treatments. Approximately $25,000 was...
