Thank you to Alexa Lofaro for hosting and the 100+ community members that participated in this virtual walk/run event! This was a volunteer-led event created to raise research funds for the advancement of ECD patient care and treatments. Approximately $25,000 was raised!
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- Research Funding Opportunity
- Your ECD Research Idea Could Receive Up to $60,000
- Funding Available: Up to $60,000 for Early Career Erdheim-Chester Disease Researchers
- Introducing Mary Burgin Executive Director Erdheim-Chester Disease Global Alliance
- Arabic Webinar with Dr. Hind Salama, Consultant in Hematology and Oncology in Riyadh, Saudi Arabia: Erdheim-Chester Disease (ECD): An Educational guidance to Patients, Families, and Medical Professionals

