A Florida fundraiser was held in December 2017 by patient Iris Vagnini. She used her creative hobby of taking exceptional photos in her garden to create a desk calendar to raise funds for the ECDGA. The advertisement and sales of this product created an opportunity to raise awareness of ECD and earned nearly $2,000 for the organization!
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- Research Funding Opportunity
- Your ECD Research Idea Could Receive Up to $60,000
- Funding Available: Up to $60,000 for Early Career Erdheim-Chester Disease Researchers
- Introducing Mary Burgin Executive Director Erdheim-Chester Disease Global Alliance
- Arabic Webinar with Dr. Hind Salama, Consultant in Hematology and Oncology in Riyadh, Saudi Arabia: Erdheim-Chester Disease (ECD): An Educational guidance to Patients, Families, and Medical Professionals

