Left to right: Jerome Henson (ECDGA), Fernando Gotz (OR Association), Diane Schriner (ECDGA), Claudio Di Girolama(HA – Canada), discussing the poster, “Global Histio: The international Patient Advocacy Group Coalition for Collaboration in Histiocytosis.” This project...
This week, ECDGA President Diane Schriner, Board Member Paul Hendrie, MD, and team member Jerome Henson are proudly representing the Erdheim-Chester Disease Global Alliance at the 41st Annual Meeting of the Histiocyte Society! This international meeting brings...
The Erdheim-Chester Disease Global Alliance (ECDGA) is issuing a final call for Letters of Intent (LOIs) for the 2025 research grant. The application period closes tomorrow, so there is only one day left to submit. This annual funding opportunity supports innovative...
https://www.erdheim-chester.org/wp-content/uploads/2025/09/Ziggy-Spreads-a-Heartfelt-Message-of-Gratitude-video.mp4 Ziggy the Zebra, the beloved mascot of the Erdheim-Chester Disease Global Alliance (ECDGA), is here with a heartfelt message of gratitude. To our...
Erdheim-Chester Disease Global Alliance Announces 2026 Patient & Family Gathering and Medical Symposium Birmingham, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites patients, families, healthcare professionals, and...
