by Steven May Jr | May 6, 2025 | News
As you prepare to attend the 10th Annual Patient and Family Gathering hosted by the Erdheim-Chester Disease Global Alliance (ECDGA), we want to ensure you have all the practical information and context you need to feel confident and supported from the moment you...
by Steven May Jr | May 3, 2025 | Social Posts
Are you a driven, roll-up-your-sleeves leader who thrives in dynamic, small-team environments? Do you want to make a real difference in the lives of people affected by a rare disease—while wearing many hats and taking action every single day? The Erdheim-Chester...
by Steven May Jr | May 3, 2025 | News
Progress in Erdheim-Chester Disease (ECD) doesn’t happen in isolation. It’s made possible through collaboration among scientists, clinicians, and the patients and families who push forward despite the unknowns. At the center of this progress stands the Medical...
by Steven May Jr | Jan 23, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce that nominations are now open for the prestigious Mark Heaney Memorial Award for Awareness. This annual award commemorates the significant contributions of Dr. Mark Heaney, a renowned...
