by Steven May Jr | Jun 10, 2025 | Featured, News
Every year, a powerful wave of determination, compassion, and solidarity spreads across the globe as individuals lace up their shoes to participate in the Erdheim-Chester Disease Global Alliance’s (ECDGA) annual Run, Walk & Roll for Hope. Scheduled for 2025, this...
by Steven May Jr | Jun 4, 2025 | Social Posts
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to share that our Medical Advisory Board member, Dr. Oshrat Hershkovitz-Rokah, will co-present a pivotal educational session at the 2025 European Hematology Association (EHA) Congress. This special #ASH–#EHA...
by Steven May Jr | May 24, 2025 | Social Posts
The ECDGA staff and volunteers have officially arrived in Barcelona and are already hard at work preparing for the upcoming Patient and Family Gathering. This annual event is a special opportunity for the ECD community to come together in person, share experiences,...
by Steven May Jr | May 24, 2025 | Social Posts
The ECDGA staff and volunteers are hard at work making final preparations for this year’s Erdheim-Chester Disease Medical Symposium. Taking place at Bellvitge University Hospital in Barcelona, this annual event brings together leading medical professionals from around...
