Nominations Open for the Mark Heaney Memorial Award for Awareness

Nominations Open for the Mark Heaney Memorial Award for Awareness

The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce that nominations are now open for the prestigious Mark Heaney Memorial Award for Awareness. This annual award commemorates the significant contributions of Dr. Mark Heaney, a renowned...
The ECD Global Alliance Exists to Help All ECD Patients Worldwide

The ECD Global Alliance Exists to Help All ECD Patients Worldwide

https://www.erdheim-chester.org/wp-content/uploads/2024/11/the-ecd-global-alliance-exists-to-help-all-ecd-patients-worldwide.mp4 In a recent short video, Mark Anderson shared an inspiring message encouraging viewers to support the Erdheim Chester Disease Global...
ECD Virtual Run, Walk, or Roll

ECD Virtual Run, Walk, or Roll

Represent your country, your state, or your fight in our Virtual Run/Walk/Roll! By wheelchair, bike, or other means, come join us in this virtual event held during ECD Awareness Month (September 9-30). Register today as a part of a team or as an individual....