by Steven May Jr | Jul 24, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG). This marks the 42nd ECD Care Center worldwide and the third recognized...
by Steven May Jr | Jul 19, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the recipient of its 2024 Early Career Investigator Grant: Dr. Priya Marathe, a clinical instructor in pediatric oncology at Memorial Sloan Kettering Cancer Center (MSK). Dr. Marathe will lead a...
by Steven May Jr | Jul 15, 2025 | Featured, News
The 2025 Get Ready to Run, Walk & Roll for Hope Fun Run has officially come to a close, and we are absolutely thrilled to announce that we not only met our fundraising goal… we surpassed it! Thanks to the generosity, enthusiasm, and heart of our incredible...
by Steven May Jr | Jul 8, 2025 | Social Posts
We’re standing just shy of the finish line—$24,017.57 raised of our $25,000 goal. That means we’re only $982.43 away from achieving something powerful. This campaign has always been about more than a number. It’s about the strength of our community. The determination...
by Steven May Jr | Jul 5, 2025 | Social Posts
Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. Every registration...
