We are pleased to announce that registration is now open for the 2026 ECD Global Alliance Medical Symposium in Birmingham, Alabama. This important annual event brings together clinicians, researchers, and medical professionals dedicated to advancing the understanding...
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the appointment of Jerome Henson as its new Executive Director. Jerome brings with him more than 30 years of leadership experience in education, having served as a teacher, principal, and...
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to open nominations for two important annual honors that recognize individuals making a meaningful impact in the ECD community through medical awareness, advocacy, compassion, and service. Together, the Mark...
Rare Disease Day is observed every year on the last day of February to raise awareness for the millions of people worldwide living with rare diseases. ECDGA is proud to stand with individuals and families navigating rare diagnoses—offering support, education, and...
Reminder: Abstract Submissions Close February 1, 2026 The ECD Global Alliance invites clinicians, researchers, and medical professionals to submit abstracts for consideration at the 2026 ECDGA Medical Symposium, taking place on May 1, 2026, at the Marnix E. Heersink...
