During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease...
At the 2025 ECDGA Patient and Family Gathering in Barcelona, Professor Julien Haroche was honored with the Mark Heaney Award for Excellence in ECD Clinical Care and Research. This award recognizes individuals who have made significant contributions to advancing the...
At the 2025 ECDGA Celebration Dinner in Barcelona, the Host Award was presented to Dr. Xavier Solanich of Bellvitge Hospital. The award was given in recognition of his outstanding support and hospitality in welcoming patients, family members, and medical professionals...
This year’s ECDGA Patient and Family Gathering in Barcelona brought together patients, caregivers, and medical professionals from around the world. This group photo captures the spirit of connection and community that defines this annual event. Together, we share...
One of the most valuable parts of the ECDGA Patient and Family Gathering is the opportunity for patients and caregivers to hear directly from the experts. During this year’s event in Barcelona, leading Erdheim-Chester Disease physicians participated in a live Q&A...
