• +1-337-202-5200
  • support@erdheim-chester.org
  • English
    • Français (French)
    • Deutsch (German)
    • Español (Spanish)
    • 繁體中文 (Chinese (Traditional))
    • Nederlands (Dutch)
    • Ελληνικά (Greek)
    • עברית (Hebrew)
    • हिन्दी (Hindi)
    • Italiano (Italian)
    • Norsk bokmål (Norwegian Bokmål)
    • Português (Portuguese (Brazil))
  • English
    • French
    • German
    • Spanish
    • Chinese (Traditional)
    • Dutch
    • Greek
    • Hebrew
    • Hindi
    • Italian
    • Norwegian Bokmål
    • Portuguese (Brazil)
  • ECD Global Alliance Logo
  • What is ECD
        • Overview
        • Treatments
        • Symptoms
        • Care Centers
        • Diagnosis
        • Care Monitoring
  • Patients/Loved Ones
        • Care Centers
        • Webinars
        • Testimonials
        • What Should I Do
        • Community Chats
        • Treatment Trials
        • Family / Carer General Information
        • Connect
        • Patient & Family Gatherings
        • Patient Surveys / Studies
        • Family / Carer Resources
        • Self-Care with ECD
        • Patient Resources
        • Request More Information
        • Family Members
        • Caregiver Connect
  • Medical Professionals
        • Care Centers
        • Treatment Trials
        • General Information
        • Patient Surveys / Studies
        • Grant Opportunities
        • Payer Appeals
        • Medical Resources
        • Annual Medical Symposiums
  • About Us
        • Our Story
        • Board and Staff
        • Resources
        • Medical Advisory Board
        • Member Locations
        • News
        • Patient Stories
        • Events
        • History
  • How to Help
        • Spread the Word
        • Award Nominations
        • Host Fundraisers
        • Ways to Donate
        • Volunteer
  • Join Us
  • Donate
  • Join Us
  • Donate

Father Charles Balnaves

by Steven May Jr | May 1, 2025 | Community Champion Award

Julien Haroche, MD, PhD

by Steven May Jr | May 1, 2025 | Mark Heaney Award

Nominations Open for the Mark Heaney Memorial Award for Awareness

Nominations Open for the Mark Heaney Memorial Award for Awareness

by Steven May Jr | Jan 23, 2025 | News

The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce that nominations are now open for the prestigious Mark Heaney Memorial Award for Awareness. This annual award commemorates the significant contributions of Dr. Mark Heaney, a renowned...
The ECD Global Alliance Exists to Help All ECD Patients Worldwide

The ECD Global Alliance Exists to Help All ECD Patients Worldwide

by Steven May Jr | Nov 25, 2024 | News

https://www.erdheim-chester.org/wp-content/uploads/2024/12/IMG_7996-copy.mp4 In a recent short video, Mark Anderson shared an inspiring message encouraging viewers to support the Erdheim Chester Disease Global Alliance (ECDGA). His message underscores the importance...
10th Annual ECD Patient & Family Gathering – Save the Date Flyer

10th Annual ECD Patient & Family Gathering – Save the Date Flyer

by Steven May Jr | Oct 15, 2024 | News

« Older Entries
Next Entries »

Search Our Blogs

Recent Posts

  • Only 3 days Until Giving Tuesday!
  • Only Four Days Til Giving Tuesday
  • Giving Tuesday is Coming Soon
  • Double Your Impact This Giving Tuesday, December 2, 2025
  • Understanding Erdheim-Chester Disease: The Molecular and Clinical Landscape
Donate

+1-337-202-5200
support@erdheim-chester.org

What is ECD?
  • Overview
  • Symptoms
  • Diagnosis
  • Treatments

Patients/Loved Ones

  • Chat Virtually
  • In-person Meetings
  • Patient Resources
  • Webinars
About Us
  • Our Story
  • Board and Staff
  • Resources
  • Medical Advisory Board
How to Help
  • Host Fundraisers
  • Volunteer
  • Spread the Word
Medical Professionals
  • Medical Resources
  • Treatment Trials
  • Grant Opportunities
  • Medical Symposium
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow


This website is for informational purposes only.

Designed by The Egghead. Copyright 2025. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization. EIN# 27-0759192.

ECD Global Alliance Logo
Charity Navigator Four-Star Rating

!

Back to Top

ECD Global Alliance does not provide Medical Advice, Diagnosis or Treatment.

Terms of Use  and  Privacy Policy

h

Join Us



Donate



Care Centers



Events