A look back at the moments, milestones, and messages you may have missed. As 2025 comes to a close, we’re taking a moment to look back at a year that brought connection, education, progress, and support to the ECD community around the world. Whether you’ve been...
This is a final and important reminder that February 1, 2026, is the deadline for ALL submissions: registrations at the early bird rate, award nominations, abstracts, and financial assistance requests related to the 2026 ECD Global Alliance Medical Symposiums....
This is a final and important reminder that February 1, 2026 is the deadline for ALL submissions: registrations at the early bird rate, award nominations, patient posters, and financial assistance requests related to the 2026 ECD Global Alliance Patient & Family...
We are excited to announce that registration is now open for the 2026 ECD Global Alliance Patient & Family Gathering, taking place in Birmingham, Alabama! Early bird registration is available until February 1, 2026. We encourage you to register early to take...
Living with Erdheim-Chester Disease (ECD) can be overwhelming. As a rare and complex condition, ECD often leaves patients and caregivers feeling isolated, uncertain, and unsure where to turn. The ECD Global Alliance (ECDGA) support network exists to change that—by...
