An Erdheim-Chester Disease diagnosis brings questions no family should have to navigate alone. Your support helps ECDGA provide trusted information, connections to experienced care, and a community that understands. Our Year-End Campaign begins today, with donations...
Dear Friend, Kathy Brewer finally learned the name of the disease that had made her husband, Gary, so ill. But the answer came after his death. For years, Gary’s health declined without a diagnosis. Only an autopsy revealed Erdheim-Chester Disease. Kathy could not...
Kathy Brewer finally learned the name of the disease that had made her husband, Gary, so ill. But the answer came after his death. For years, Gary’s health declined without a diagnosis, despite extensive evaluations at major medical centers. Only an autopsy revealed...
Dear Community Member You have been part of the Erdheim-Chester Disease Global Alliance’s work to bring support, information, and hope to people affected by ECD. We remain grateful for your past generosity, and we are writing to invite you to join us again during our...
The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 USD will be awarded for a two-year research project focused on Erdheim-Chester Disease or related adult histiocytic disorders. International submissions...
