During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease community.
Father Charles’s unwavering commitment to lifting up others, offering comfort, and fostering connection has made a lasting impact on the lives of many facing the challenges of ECD. We are proud to celebrate his dedication and the difference he continues to make.
Learn more about our mission and community at www.erdheim-chester.org.
The Erdheim-Chester Disease Global Alliance (ECDGA) does not provide medical advice, diagnoses, or treatments. All content is for informational purposes only. Please consult with a healthcare provider for medical concerns.