Thank you to Alexa Lofaro for hosting and the 100+ community members that participated in this virtual walk/run event! This was a volunteer-led event created to raise research funds for the advancement of ECD patient care and treatments. Approximately $25,000 was raised!
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- ECDGA at the 2025 American College of Rheumatology (ACR) Annual Conference
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- Xavier Solanich, MD, PhD

