The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG). This marks the 42nd ECD Care Center worldwide and the third recognized...
Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. Every registration...
Participating in the ECDGA’s annual Run, Walk & Roll for Hope is powerful on its own—but forming a team can take your involvement to an entirely new level. Whether you’re rallying coworkers, uniting family members, or gathering a group of friends, creating a team...
The 2025 Run, Walk & Roll for Hope brings together supporters from all corners of the globe in the fight to raise awareness for Erdheim-Chester Disease (ECD). For those participating virtually, your impact is just as powerful—and with a little creativity and...
Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) invites the world to come together for one powerful reason: to raise awareness for Erdheim-Chester Disease (ECD), a rare and often misunderstood form of blood cancer. The Run, Walk & Roll for Hope...
