by Steven May Jr | Jul 29, 2025 | News
Please join me in welcoming Diane Schriner as the new ECD Global Alliance President. Diane has been an integral part of the ECDGA Board of Directors since 2018 and has served as Vice President since 2021. During that time, she has exemplified extraordinary compassion,...
by Steven May Jr | Jul 24, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG). This marks the 42nd ECD Care Center worldwide and the third recognized...
by Steven May Jr | Jun 17, 2025 | Featured, News
Participating in the ECDGA’s annual Run, Walk & Roll for Hope is powerful on its own—but forming a team can take your involvement to an entirely new level. Whether you’re rallying coworkers, uniting family members, or gathering a group of friends, creating a team...
by Steven May Jr | Jun 17, 2025 | Featured, News
The 2025 Run, Walk & Roll for Hope brings together supporters from all corners of the globe in the fight to raise awareness for Erdheim-Chester Disease (ECD). For those participating virtually, your impact is just as powerful—and with a little creativity and...
by Steven May Jr | Jun 12, 2025 | Featured, News
Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) invites the world to come together for one powerful reason: to raise awareness for Erdheim-Chester Disease (ECD), a rare and often misunderstood form of blood cancer. The Run, Walk & Roll for Hope...
