Join the Global Movement—One Step at a Time

Join the Global Movement—One Step at a Time

The ECDGA Virtual Fun Run/Walk/Roll is gaining global traction, with participants already joining in from across the United States and beyond. We recently added Canada, Great Britain, New Zealand, and Australia and now we’re calling on supporters from around the world...
5 Ways to Make the Most of Your Virtual Run for ECD Awareness

5 Ways to Make the Most of Your Virtual Run for ECD Awareness

The 2025 Run, Walk & Roll for Hope brings together supporters from all corners of the globe in the fight to raise awareness for Erdheim-Chester Disease (ECD). For those participating virtually, your impact is just as powerful—and with a little creativity and...