• +1-337-202-5200
  • support@erdheim-chester.org
  • English
    • Français (French)
    • Deutsch (German)
    • Español (Spanish)
    • 繁體中文 (Chinese (Traditional))
    • Nederlands (Dutch)
    • Ελληνικά (Greek)
    • עברית (Hebrew)
    • हिन्दी (Hindi)
    • Italiano (Italian)
    • Norsk bokmål (Norwegian Bokmål)
    • Português (Portuguese (Brazil))
  • English
    • French
    • German
    • Spanish
    • Chinese (Traditional)
    • Dutch
    • Greek
    • Hebrew
    • Hindi
    • Italian
    • Norwegian Bokmål
    • Portuguese (Brazil)
  • ECD Global Alliance Logo
  • What is ECD
        • Overview
        • Treatments
        • Symptoms
        • Care Centers
        • Diagnosis
        • Care Monitoring
  • Patients/Loved Ones
        • Care Centers
        • Webinars
        • Testimonials
        • What Should I Do
        • Community Chats
        • Treatment Trials
        • Family / Carer General Information
        • Connect
        • Patient & Family Gatherings
        • Patient Surveys / Studies
        • Family / Carer Resources
        • Self-Care with ECD
        • Patient Resources
        • Request More Information
        • Family Members
        • Caregiver Connect
  • Medical Professionals
        • Care Centers
        • Treatment Trials
        • General Information
        • Patient Surveys / Studies
        • Grant Opportunities
        • Payer Appeals
        • Medical Resources
        • Annual Medical Symposiums
        • Specialists
  • About Us
        • Our Story
        • Board and Staff
        • Resources
        • Medical Advisory Board
        • Member Locations
        • News
        • Patient Stories
        • Events
  • How to Help
        • How to Fundraise
        • Spread the Word
        • Host Fundraisers
        • Award Nominations
        • Volunteer
  • Join Us
  • Donate
  • Join Us
  • Donate
ECDGA Team Arrives in Barcelona for the Patient & Family Gathering

ECDGA Team Arrives in Barcelona for the Patient & Family Gathering

by Steven May Jr | May 24, 2025 | Social Posts

The ECDGA staff and volunteers have officially arrived in Barcelona and are already hard at work preparing for the upcoming Patient and Family Gathering. This annual event is a special opportunity for the ECD community to come together in person, share experiences,...
Preparations Underway at Bellvitge for the ECDGA Medical Symposium

Preparations Underway at Bellvitge for the ECDGA Medical Symposium

by Steven May Jr | May 24, 2025 | Social Posts

The ECDGA staff and volunteers are hard at work making final preparations for this year’s Erdheim-Chester Disease Medical Symposium. Taking place at Bellvitge University Hospital in Barcelona, this annual event brings together leading medical professionals from around...
Dr. Gaurav Goyal Shows Support for ECDGA in Barcelona

Dr. Gaurav Goyal Shows Support for ECDGA in Barcelona

by Steven May Jr | May 24, 2025 | Social Posts

Dr. Gaurav Goyal of the University of Alabama at Birmingham (UAB) is pictured here proudly supporting the Erdheim-Chester Disease Global Alliance (ECDGA) during his time in Barcelona. Dr. Goyal has been an active voice in the ECD medical community, and his continued...
Next Entries »

Search Our Blogs

Recent Posts

  • Meet Ziggy the Zebra: Our New Mascot with a Big Mission!
  • Topic: Managing Diabetes Insipidus (DI)
  • Advancing ECD Research: Apply Now for the 2025 ECDGA Grant Opportunity
  • Now Available: 2025 Spanish Webinar Featuring Dr. Xavier Solanich
  • Watch the 2025 Patient & Family Gathering Sessions Now on YouTube
Donate

+1-337-202-5200
support@erdheim-chester.org

What is ECD?
  • Overview
  • Symptoms
  • Diagnosis
  • Treatments

Patients/Loved Ones

  • Chat Virtually
  • In-person Meetings
  • Patient Resources
  • Webinars
About Us
  • Our Story
  • Board and Staff
  • Resources
  • Medical Advisory Board
How to Help
  • Host Fundraisers
  • How to Fundraise
  • Volunteer
  • Spread the Word
Medical Professionals
  • Medical Resources
  • Treatment Trials
  • Grant Opportunities
  • Medical Symposium
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow


This website is for informational purposes only.

Designed by The Egghead. Copyright 2025. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization. EIN# 27-0759192.

ECD Global Alliance Logo
Charity Navigator Four-Star Rating

!

Back to Top

ECD Global Alliance does not provide Medical Advice, Diagnosis or Treatment.

Terms of Use  and  Privacy Policy

h

Join Us



Donate



Care Centers