The Erdheim-Chester Disease Global Alliance (ECDGA) invites physicians, researchers, and healthcare professionals to attend the ECDGA Medical Symposium, taking place April 30 – May 2, 2026, in Birmingham, Alabama. This symposium will bring together experts and...
https://www.erdheim-chester.org/wp-content/uploads/2026/02/ezgif-2f1f6a9c7f99874a.mp4 Your support helps create awareness, compassion, and hope. Here’s how you can help today: Share your story Make a gift to support our mission Learn more and advocate for rare disease...
Every ECD journey is unique. There is no one-size-fits-all diet, and nutrition should always complement, not replace, medical treatment. Listening to your body and working closely with your healthcare team is key. If you do not have a nutritionist on your medical...
https://www.erdheim-chester.org/wp-content/uploads/2026/02/RebeccaBooneStory-m.mp4 Ziggy recently had the pleasure of interviewing Rebecca Boone about her journey with ECD. Rebecca shared her personal experiences, challenges, and the impact ECD has had on her life....
Created using the Donation Thermometer plugin https://wordpress.org/plugins/donation-thermometer/.$30,000.00Raised $30,000.00 towards the $30,000.00 target.$30,000.00Raised $30,000.00 towards the $30,000.00 target.100.00% A generous donor has stepped forward with an...
