by Steven May Jr | Aug 23, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/08/A_realistic_cinematic_202508181055_yfmfz-1.mp4 The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to introduce our newest team member—Ziggy the Zebra! Ziggy isn’t your average zebra. Ziggy...
by Steven May Jr | Jul 31, 2025 | News
The ECD Global Alliance (ECDGA) is proud to announce the release of the complete video recordings from the 2025 Annual Patient & Family Gathering in Barcelona. If you were unable to attend in person or would like to revisit the incredible insights shared by global...
by Steven May Jr | Jul 29, 2025 | News
Please join me in welcoming Diane Schriner as the new ECD Global Alliance President. Diane has been an integral part of the ECDGA Board of Directors since 2018 and has served as Vice President since 2021. During that time, she has exemplified extraordinary compassion,...
by Steven May Jr | Jul 19, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the recipient of its 2024 Early Career Investigator Grant: Dr. Priya Marathe, a clinical instructor in pediatric oncology at Memorial Sloan Kettering Cancer Center (MSK). Dr. Marathe will lead a...
