by Steven May Jr | Jun 6, 2025
The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 16 through July 15, 2025, we invite YOU—patients, caregivers, supporters, and advocates around...
by Steven May Jr | May 24, 2025 | Social Posts
The ECDGA staff and volunteers have officially arrived in Barcelona and are already hard at work preparing for the upcoming Patient and Family Gathering. This annual event is a special opportunity for the ECD community to come together in person, share experiences,...
