by Steven May Jr | May 7, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) welcomes medical professionals from around the world to the 2025 Annual Medical Symposium on Erdheim-Chester Disease, held in Barcelona at Bellvitge University Hospital. This annual gathering is the only...
by Steven May Jr | May 7, 2025 | News
Speaker: Eli Diamond, MD Time: 10:50 AM – 11:05 AM Date: May 26, 2025 Patient & Family Gathering For many individuals living with Erdheim-Chester Disease (ECD), the involvement of the brain and eyes can be among the most difficult and frightening complications to...
by Steven May Jr | May 6, 2025 | News
Speaker: Julien Haroche, MD, PhD Time: 9:35 AM – 9:55 AM Date: May 26, 2025 Patient & Family Gathering In the world of Erdheim-Chester Disease (ECD), few names are more widely respected than Dr. Julien Haroche. For more than two decades, Dr. Haroche has led...
by Steven May Jr | May 6, 2025 | News
The Patient and Family Gathering is one of the most anticipated events of the year for the Erdheim-Chester Disease community. Each session is carefully selected to offer insight, clarity, and support for individuals living with ECD and the loved ones who stand beside...
by Steven May Jr | May 6, 2025 | News
As you prepare to attend the 10th Annual Patient and Family Gathering hosted by the Erdheim-Chester Disease Global Alliance (ECDGA), we want to ensure you have all the practical information and context you need to feel confident and supported from the moment you...
