by Asmaa Javed | Sep 9, 2025 | News
The July 31 Canada Monthly Chat was a truly special event, featuring guest speaker Gary Tobin, who shared his extraordinary journey of resilience and survival after being diagnosed with stage 4 Acral Lentiginous Melanoma. This session was recorded so the broader...
by Asmaa Javed | Sep 8, 2025 | Webinar Recordings
Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine Vasopressin Deficiency, formerly known as Diabetes...
by Steven May Jr | Aug 12, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the 2025 Call for Letters of Intent (LOIs) for research projects focused on Erdheim-Chester Disease (ECD) and related adult histiocytic disorders. This annual funding opportunity aims to...
by Steven May Jr | Jul 31, 2025 | News
The ECD Global Alliance (ECDGA) is proud to announce the release of the complete video recordings from the 2025 Annual Patient & Family Gathering in Barcelona. If you were unable to attend in person or would like to revisit the incredible insights shared by global...
