Study Objective: Understand clinical characteristics, underlying biology, response to therapy and outcome of patients with Erdheim-Chester disease.
Principal Investigator: Filip Janku, M.D., Ph.D., MD Anderson Cancer Center, Houston, TX 77030 USA
Contact Information: Phone: 713-563-2632
Requested Patient Involvement: ECD patients being treated at MD Anderson are encouraged to enroll by having their treating physician contact Dr. Janku. Contact Dr. Janku or the ECD Global Alliance for more information.