Social Security Disability Insurance (SSDI) or “Disability” provides monthly payments to people who have a disability that stops or limits their ability to work. ECD is on the SSA Compassionate Allowance list that is meant to reduce the waiting time to reach a disability determination.
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- Research Funding Opportunity
- Your ECD Research Idea Could Receive Up to $60,000
- Funding Available: Up to $60,000 for Early Career Erdheim-Chester Disease Researchers
- Introducing Mary Burgin Executive Director Erdheim-Chester Disease Global Alliance
- Arabic Webinar with Dr. Hind Salama, Consultant in Hematology and Oncology in Riyadh, Saudi Arabia: Erdheim-Chester Disease (ECD): An Educational guidance to Patients, Families, and Medical Professionals

