7th Annual ECD Patient & Family Gathering Milan, Italy
Milan International ECD Patient & Family Gathering Group Picture 2019
Patient & Family Gathering Summary
The 2019 Patient & Family Gathering (PFG) brought together 49 patients and family members from 10 countries. The patient/family community was joined by 38 clinicians and scientists who are passionate about caring for patients and learning more about Erdheim-Chester Disease. Ten clinicians/scientists provided talks on ECD and ECD support needs. A Celebration Dinner with all attendees was enjoyed, allowing time for fellowship and recognition of community leaders who dedicate their time and संसाधन to aid the ECD community. Please see the information below for more on the PFG activities and presentations, as well as pictures from the conference.
Programs with Gathering Agenda
Presentation
प्रतिभागी अनुभव
“It was amazing to witness the dedication and commitment that these doctors displayed regarding the diagnosing, treatment, and research efforts as it relates to ECD. I am grateful for this rare opportunity.”
– Leretha R. Thomas, ECD Caregiver
“मैं स्वास्थ्य सेवा में 20 से अधिक वर्षों से कार्यरत हूँ और मैंने कभी भी इतने देखभाल करने वाले और समर्पित स्वास्थ्य सेवा पेशेवरों और स्वयंसेवकों का समूह नहीं देखा या अनुभव नहीं किया!”
– ईसीडी उपस्थित रोगी
Photographs
चिकित्सा संगोष्ठी
Reception/Dinner Photos
