Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about […]
Date: Apr 15, 2025
Time: 12:00 pm
We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held in Glasgow, Scotland in August 2027. This special event will bring together patients, […]
We are excited to announce that the 12th Annual ECDGA Medical Symposium will be held in Glasgow, Scotland in August 2027. This special event will bring together researchers and clinicians from […]
