• Endocrine Conditions in Erdheim-Chester Disease

    This webinar, co-hosted by the Histiocytosis Association and Erdheim-Chester Disease Global Alliance focused on ECD and covers endocrine conditions and their management across all histiocytic disorders.

  • 2021 ECD Virtual Medical Symposium

    The 8th Annual International ECD Medical Symposium was held on November 16, 2021. This virtual experience was organized in hopes that the medical community is provided the opportunity to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease and other histiocytic disorders.

  • Beyond the Office Visit: Moving Through Rare Disease

    Tim Facciola, Certified Personal Trainer & Movement Specialist, joins us in a conversation about incorporating movement and exercise into life when managing a chronic illness or a rare disease, such as Erdheim-Chester Disease.

  • Beyond the Office Visit: Navigating Clinical Trials for Histiocytosis

    Taking part in a clinical trial can have many benefits for the patient and the community. We hope this session will help you better understand clinical trials, how to talk to your doctor about trials, and leave you feeling prepared with the right resources.

  • Coping Strategies for Depression & Anxiety

    Listen to Kevin O'Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.