Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its symptoms, diagnosis, and the latest treatment options. Don't miss out on expert knowledge that could make a difference!
The Leukemia & Lymphoma Society offers a free service called the Clinical Trial Support Center (CTSC) to help blood cancer patients, caregivers, and healthcare professionals find potential clinical trials and overcome enrollment barriers. This webinar will discuss the process and support Erdheim-Chester patients.
Date: Apr 15, 2025
Time: 12:00 pm
Date: Apr 16, 2025
Time: 08:00 pm
Date: 19 April, 2025
Time: 01:30 pm to 02:30 pm
Date: Apr 23, 2025
Time: 12:00 pm
Date: Apr 26, 2025
Time: 11:00 AM
Date: Apr 29, 2025
Time: 02:00 pm
Overview of the various education resources and support services provided to patients and their families and the healthcare providers that care for them.
Date: May 5, 2025
Time: 12:00 pm
Date: May 13, 2025
Time: 08:00 pm
The ECD Global Alliance is excited to convene the 10th annual Patient & Family Gathering in Barcelona, Spain. The meeting will be hosted in partnership with Bellvitge Universitari Hospital on 26 May 2025. All patients, family members, friends, and medical professionals are welcome!
Part of the ECD Global Alliance’s mission is to educate and support patients with the information they need to advocate for their health and quality of life. The purpose of a Patient and Family Gathering (PFG) is to unite patients and family members, as well as increase their knowledge and understanding of Erdheim-Chester disease.
The PFG provides attendees with a place to meet and an opportunity to direct questions and concerns to an international group of medical professionals who have experience in caring for ECD patients and who are doing research in the field. The information that is shared can help lead a patient to quickly learn more about ECD and possible treatment options, as well as hear about the latest research findings.
