Erdheim-Chester Disease Targeted Therapies: The good and the bad
Learn about the treatments used to treat Erdheim-Chester disease (ECD), what to expect over time and the side effects that may be involved.
Learn about the treatments used to treat Erdheim-Chester disease (ECD), what to expect over time and the side effects that may be involved.
Taking part in a clinical trial can have many benefits for the patient and the community. We hope this session will help you better understand clinical trials, how to talk to your doctor about trials, and leave you feeling prepared with the right resources.
Dr. Michael Girschikofsky from the Elisabethinen Hospital Linz explains ECD to German-speaking ECD patients and families.
Listen to Kevin O'Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.
Listen to an experienced ECD caregiver as she shares her insights and coping mechanisms for self-care.
Information Specialists offer free, one-on-one education, psychosocial support, and advocacy for blood cancer patients, caregivers, and families. They cover disease and treatment options, clinical trials, mental health support, and treatment team communication.
Date: March 7, 2025
Time: 03:00 pm
Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its symptoms, diagnosis, and the latest treatment options. Don't miss out on expert knowledge that could make a difference!
The Leukemia & Lymphoma Society offers a free service called the Clinical Trial Support Center (CTSC) to help blood cancer patients, caregivers, and healthcare professionals find potential clinical trials and overcome enrollment barriers. This webinar will discuss the process and support Erdheim-Chester patients.
Date: Apr 15, 2025
Time: 12:00 pm
Date: Apr 16, 2025
Time: 08:00 pm
Date: 19 April, 2025
Time: 01:30 pm to 02:30 pm