All patients and loved ones interested in learning more about ECD and meeting other families are encouraged to attend the following events. The registration fee for the 2-day event includes access to all conference sessions, reception dining, as well as lunch and light refreshments during conference break times. The following meeting times are subject to change.
2021 Annual International ECD Medical Symposium Virtual Symposium Thank you for participating in this year’s virtual symposium! Provided below is a listing for this meeting, including the agenda, a printable program, speaker bios, abstracts, and presentation slides. Following the meeting, a recording will be added here and emailed to attendees. 2021 Virtual Event Agenda Medical […]
Date: March 7, 2025
Time: 03:00 pm
Date: Apr 15, 2025
Time: 12:00 pm
Date: Apr 16, 2025
Time: 08:00 pm
Date: 19 April, 2025
Time: 01:30 pm to 02:30 pm
Date: Apr 23, 2025
Time: 12:00 pm
Date: Apr 26, 2025
Time: 11:00 AM
Date: Apr 29, 2025
Time: 02:00 pm
Date: May 5, 2025
Time: 12:00 pm
Date: May 13, 2025
Time: 08:00 pm
The ECD Global Alliance is excited to convene the 10th annual Patient & Family Gathering in Barcelona, Spain. The meeting will be hosted in partnership with Bellvitge Universitari Hospital on 26 May 2025. All patients, family members, friends, and medical professionals are welcome!
