4th International ECD Patient & Family Gathering

A total of 63 patients and family members, and numerous physicians, from 17 different countries attended the 2016 Patient & Family Gathering. Attendees learned about current ECD studies and trials, how ECD can affect various organs of the body, pain management, scans, and care management. Please see the event materials below for more on this successful event.

4th Annual ECD Medical Symposium

Location: Paris, France Summary of Presentations Presentations The following presentations were given at the 2016 meeting. Visit the ECD Global Alliance YouTube channel for all published ECD related videos.