ECD Patient & Family Gathering
10th Annual ECD Patient & Family Gathering
May 26, 2025
7:00 AM – 7:00 PM CDT
7:00 AM – 7:00 PM CDT
Start date & time in your local time zone.
May 26, 2025 7:00 AM CDT
May 26, 2025 7:00 AM CDT
The ECD Global Alliance is excited to convene the 10th annual Patient & Family Gathering in Barcelon...
7th International ECD Patient & Family Gathering
January 11, 2019
7:00 AM – 4:00 PM CST
7:00 AM – 4:00 PM CST
Start date & time in your local time zone.
January 11, 2019 7:00 AM CST
January 11, 2019 7:00 AM CST
All patients and loved ones interested in learning more about ECD and meeting other families are enc...
6th Annual International ECD Patient & Family Gathering
May 15, 2018
11:00 PM – 10:59 PM CDT
11:00 PM – 10:59 PM CDT
Start date & time in your local time zone.
May 15, 2018 11:00 PM CDT
May 15, 2018 11:00 PM CDT
A total of 109 patients, family members, and physicians, from eight countries attended the 2018 Pati...
5th Annual International ECD Patient & Family Gathering
April 26, 2017
11:00 PM – 10:59 PM CDT
11:00 PM – 10:59 PM CDT
Start date & time in your local time zone.
April 26, 2017 11:00 PM CDT
April 26, 2017 11:00 PM CDT
Thank you to the 150 participants for making this year’s ECD Patient Gathering a huge success! Pat...
4th International ECD Patient & Family Gathering
March 15, 2016
11:00 PM – 10:59 PM CDT
11:00 PM – 10:59 PM CDT
Start date & time in your local time zone.
March 15, 2016 11:00 PM CDT
March 15, 2016 11:00 PM CDT
A total of 63 patients and family members, and numerous physicians, from 17 different countries atte...