ECD Patient & Family Gathering

The ECD Global Alliance is excited to convene the 10th annual Patient & Family Gathering in Barcelon...

All patients and loved ones interested in learning more about ECD and meeting other families are enc...

A total of 109 patients, family members, and physicians, from eight countries attended the 2018 Pati...

Thank you to the 150 participants for making this year’s ECD Patient Gathering a huge success! Pat...

A total of 63 patients and family members, and numerous physicians, from 17 different countries atte...