• The Leukemia & Lymphoma Society Support Series Part 3: Clinical Trial Support Center

    The Leukemia & Lymphoma Society offers a free service called the Clinical Trial Support Center (CTSC) to help blood cancer patients, caregivers, and healthcare professionals find potential clinical trials and overcome enrollment barriers. This webinar will discuss the process and support Erdheim-Chester patients.

  • ECD, A Global Vision

    Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis.

  • Topic: Managing Diabetes Insipidus (DI)

    Speaker: Pat Gildroy, Ph.D Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine […]

  • Topic: Diagnosis and Treatment of Histiocytic Disorders

    Speaker: XinXin Cao, MD Cancer Hospital, Chinese Academy of Medical Sciences, Chief Physician, PhD Supervisor, Deputy Director of Internal Medicine (Langfang Campus) Has long been engaged in clinical and basic […]

  • Topic: Erdheim-Chester Disease (ECD): Decoding diagnosis and treatments

    Speaker: Jerome Razanamahery, MD Dijon University Hospital Date: December 1, 2025 Time: 5:00 PM CET (UTC +1) (Paris Time) Dr. Razanamahery is an expert in internal medicine with a recognized […]