• Coping Strategies for Depression & Anxiety

    Listen to Kevin O'Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.

  • Caring for yourself through the holidays

    Listen to an experienced ECD caregiver as she shares her insights and coping mechanisms for self-care.

  • The Leukemia & Lymphoma Society Support Series Part 2: Information Resource Center

    Information Specialists offer free, one-on-one education, psychosocial support, and advocacy for blood cancer patients, caregivers, and families. They cover disease and treatment options, clinical trials, mental health support, and treatment […]

  • Rosai Dorfman Disease

    Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its symptoms, diagnosis, and the latest treatment options. Don't miss out on expert knowledge that could make a difference!

  • The Leukemia & Lymphoma Society Support Series Part 3: Clinical Trial Support Center

    The Leukemia & Lymphoma Society offers a free service called the Clinical Trial Support Center (CTSC) to help blood cancer patients, caregivers, and healthcare professionals find potential clinical trials and overcome enrollment barriers. This webinar will discuss the process and support Erdheim-Chester patients.

  • ECD, A Global Vision

    Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis.

  • Topic: Managing Diabetes Insipidus (DI)

    Speaker: Pat Gildroy, Ph.D Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine […]

  • Topic: Diagnosis and Treatment of Histiocytic Disorders

    Speaker: XinXin Cao, MD Cancer Hospital, Chinese Academy of Medical Sciences, Chief Physician, PhD Supervisor, Deputy Director of Internal Medicine (Langfang Campus) Has long been engaged in clinical and basic […]

  • Topic: Erdheim-Chester Disease (ECD): Decoding diagnosis and treatments

    Speaker: Jerome Razanamahery, MD Dijon University Hospital Date: December 1, 2025 Time: 5:00 PM CET (UTC +1) (Paris Time) Dr. Razanamahery is an expert in internal medicine with a recognized […]