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Get Ready to Run, Walk & Roll for Hope! The 2025 Fun Run is Here!

The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 16 through July 15, 2025, we invite YOU—patients, caregivers, supporters, and advocates around the world—to join our united movement of strength, visibility, and hope. This fully virtual event is […]

Looking Ahead: Erdheim-Chester Disease Awareness Week Is Coming Soon

As we move into the final weeks of summer, the Erdheim-Chester Disease Global Alliance (ECDGA) is preparing for one of the most impactful moments of the year—Erdheim-Chester Disease Awareness Week, observed globally from September 8 through 13. This dedicated week is an important opportunity to raise worldwide awareness of Erdheim-Chester Disease (ECD)—a rare, life-altering blood […]