The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2025 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 16 through July 15, 2025, we invite YOU—patients, caregivers, supporters, and advocates around the world—to join our united movement of strength, visibility, and hope. This fully virtual event is […]
As we move into the final weeks of summer, the Erdheim-Chester Disease Global Alliance (ECDGA) is preparing for one of the most impactful moments of the year—Erdheim-Chester Disease Awareness Week, observed globally from September 8 through 13. This dedicated week is an important opportunity to raise worldwide awareness of Erdheim-Chester Disease (ECD)—a rare, life-altering blood […]
The Erdheim-Chester Disease Global Alliance and UAB School of Medicine are hosting a Patient & Family Gathering designed to support patients, families, clinicians, and researchers. The event will feature educational discussions, community connection, and updates on treatment progress and patient care resources.
The Erdheim-Chester Disease Global Alliance and UAB School of Medicine are hosting a Medical Symposium bringing together leading experts and the global ECD community to share research advances, clinical insights, and resources. Attendees can expect educational sessions, networking, and updates on emerging treatments.
