Angel Hearts Launches in Seymour

Dec 31, 2011

An article about a man, with Erdheim-Chester Disease, who with his wife has started a nonprofit organization called, ‘Angel Hearts’. The organization is dedicated to helping families who are in need because of medical conditions, including illness and...

A Rare Disease Leaves a Man Feeling Blessed

Dec 31, 2011

An inspirational first-person account from someone who is living with ECD. *A version of the “A Man Blessed” story from above that does not require a subscription to the newspaper.

ECD Patient Learns to Scuba Dive

Dec 31, 2009

A story about a young woman with Erdheim-Chester Disease who has been blinded by the disease. In spite of this, she learned to scuba dive.