by Asmaa Javed | Dec 31, 2014 | Uncategorized
The August 2014 NIH Clinical Center Newsletter featured a story about the planned 2014 ECD Medical Symposium hosted by the NIH, in partnership with the ECD Global Alliance.
by Asmaa Javed | Dec 31, 2012 | Uncategorized
NIH film documenting Rare Disease Day at the NIH on February 29, 2012. The first part of the video shows an ECD display and one of our members talking with Dr. Juvianee Estrada-Veras.
by Asmaa Javed | Dec 31, 2012 | Uncategorized
Walt Comer, an ECD patient, and his wife tell of their experiences of living with ECD.
by Asmaa Javed | Dec 31, 2011 | Uncategorized
A local news story about a Hillsboro, Missouri man and his journey related to Erdheim-Chester Disease.
by Asmaa Javed | Dec 31, 2011 | Uncategorized
A local news story about a high school student who is working to raise money for ECD research.
by Asmaa Javed | Dec 31, 2011 | Uncategorized
An article about a patient and her husband, living in Arizona, who are working to help raise awareness of ECD and fund ECD research.
