A generous donor is matching all donations made during Week 3 up to $10,000. Don’t miss this opportunity to DOUBLE your impact. If you’ve been waiting to donate, now is the time. If you’ve been thinking about supporting the ECD community, now is the...
Progress Update Goal: $25,000 We still have work to do, but together we can get there. This week’s matching challenge means every donation has twice the impact. Make a gift, share your fundraiser, and help us spread the word. Every dollar matters. Every...
Together, We Move Forward From the Erdheim-Chester Disease Global Alliance As we step into 2025, the Erdheim-Chester Disease Global Alliance (ECDGA) reflects on another meaningful year of connection, progress, and unwavering commitment to our mission. From our...
Dear ECDGA Community, As we approach the close of the year, we want to take a moment to thank you for being such an important part of the ECDGA community. Your generosity, encouragement, and belief in our mission make a meaningful difference every single day. There is...
“When you become very good at caregiving, you have to understand the difference between a ‘laugh cry’ and a ‘sad cry’,” he said as he addressed a room of people going through similar situations.
