AIRI Onlus Italy

Is a non-profit association in Italy that supports patients and families affected by rare immunological and histiocytic disorders. They focus on providing assistance, spreading awareness, promoting medical research, and creating a network of solidarity among patients,...

Associazione Italiana Linfoistiocitosi Emofagocitica – A.I.L.E.

Is an Italian patient advocacy group dedicated to supporting individuals and families affected by Hemophagocytic Lymphohistiocytosis (HLH). They provide information, raise awareness, promote research, and offer guidance to help improve the quality of life for patients...

Social Security Disabilitiy

Social Security Disability Insurance (SSDI) or “Disability” provides monthly payments to people who have a disability that stops or limits their ability to work. ECD is on the SSA Compassionate Allowance list that is meant to reduce the waiting time to reach a...

Genentech Access 

Offers assistance for the use of  Zelboraf (vemurafenib), Cotellic (cobimetinib), and Actemra (tocilizumab).

KINERET® On TRACK™

Provides assistance with prescription delivery, insurance, and reimbursement; and answers to some of their Kineret-related questions.