by Asmaa Javed | Sep 7, 2025 | Partner Associations
Is an Italian patient advocacy group dedicated to supporting individuals and families affected by Hemophagocytic Lymphohistiocytosis (HLH). They provide information, raise awareness, promote research, and offer guidance to help improve the quality of life for patients...
by Asmaa Javed | May 12, 2025 | Insurance and Financial Assistance
Social Security Disability Insurance (SSDI) or “Disability” provides monthly payments to people who have a disability that stops or limits their ability to work. ECD is on the SSA Compassionate Allowance list that is meant to reduce the waiting time to reach a...
by Asmaa Javed | Jan 12, 2025 | Medication Assistance
Offers assistance for the use of Zelboraf (vemurafenib), Cotellic (cobimetinib), and Actemra (tocilizumab).
by Asmaa Javed | Jan 12, 2025 | Medication Assistance, Resources
Offers assistance for the use of Mekinist (trametinib) and Tafinlar (dabrafenib).
by Asmaa Javed | Jan 12, 2025 | Medication Assistance, Resources
Provides assistance with prescription delivery, insurance, and reimbursement; and answers to some of their Kineret-related questions.
by Asmaa Javed | Jan 12, 2025 | Medication Assistance, Resources
Is dedicated to helping people who cannot afford medicine or health care costs.
