Tribute to Raina, Let’s End ECD!

Tribute to Raina, Let’s End ECD!

By Chris Evans – ECD Awareness Week 2020 My sister, Raina, was diagnosed with a histiocytic disorder similar to Erdheim-Chester Disease in many ways. She fought valiantly against the disease for several years, even enduring an unusually painful bone marrow...
Consensus Document: Patient Use & Benefits

Consensus Document: Patient Use & Benefits

What is a consensus?  A medical consensus is a report on a specific subject, such as Erdheim-Chester Disease, from a group of medical experts that have a particular knowledge of the disease. This group of experts agree on evidence-based and state-of-the-art...