Press Releases | Erdheim-Chester Disease Global Alliance

Care Network Serves Australian Rare Disease Patients

Care Network Serves Australian Rare Disease Patients

by Asmaa Javed | Dec 31, 2017 | Press Releases

The Erdheim-Chester Disease Global Alliance is proud to announce the first ECD Referral Care Center to be located in Australia.

FDA Approves Zelboraf (Vemurafenib) for Erdheim-Chester Disease with BRAF V600 Mutation

FDA Approves Zelboraf (Vemurafenib) for Erdheim-Chester Disease with BRAF V600 Mutation

by Asmaa Javed | Dec 31, 2017 | Press Releases

First FDA-Approved drug for this rare disease

Global Excellence Awards Given for Rare Disease Advocacy

Global Excellence Awards Given for Rare Disease Advocacy

by Asmaa Javed | Dec 31, 2016 | Press Releases

Exceptional contributors recognized at the Third Annual International Erdheim-Chester Disease Patient & Family Gathering.

Italian Scientists Win Grant from Grassroots Louisiana Non-Profit

Italian Scientists Win Grant from Grassroots Louisiana Non-Profit

by Asmaa Javed | Dec 31, 2016 | Press Releases

The ECD Global Alliance awards Erdheim-Chester Disease research grant for new treatment possibilities using the RCCS™ Bioreactor.

Governor Bel Edwards Proclaims Rare Disease Day in Louisiana

Governor Bel Edwards Proclaims Rare Disease Day in Louisiana

by Asmaa Javed | Dec 31, 2016 | Press Releases

Erdheim-Chester Disease is one of 7,000 rare diseases supported by the Louisiana proclamation.

Mayor Roberts proclaims Rare Disease Day in DeRidder

Mayor Roberts proclaims Rare Disease Day in DeRidder

by Asmaa Javed | Dec 31, 2016 | Press Releases

Erdheim-Chester Disease is one of 7,000 rare diseases supported by the local proclamation.

« Older Entries

Next Entries »