by Asmaa Javed | Mar 21, 2025 | News
There is so much progress yet to be made in researching treatments for Erdheim-Chester Disease (ECD) and all rare diseases. As an ultra-rare blood cancer that affects multiple organs, ECD remains widely underrecognized, and many patients face delays in diagnosis and...
by Asmaa Javed | Mar 21, 2025 | News
Don’t miss the deadline! February 24 is the last day to submit abstracts for the 10th Annual ECD Medical Conference. All abstracts related to Erdheim-Chester Disease or adult histiocytic disorders are are eligible. Submit...
by Asmaa Javed | Mar 21, 2025 | News
Every year, on the last day of February, the global community comes together to recognize Rare Disease Day—a vital initiative that highlights the challenges faced by individuals living with rare conditions. On February 28, 2025, the Erdheim-Chester Disease Global...
by Asmaa Javed | Mar 21, 2025 | News
Don’t miss this unique opportunity to learn more about adult histiocytosis and Erdheim-Chester Disease. Come to learn, to share your research, to connect with experts, or to experience beautiful Barcelona! No matter your motivation, you will be welcome! Be part of...
by Asmaa Javed | Mar 21, 2025 | News
Please join us! The ECD Patient and Family Gathering (PFG) unites patients and family members while increasing knowledge and understanding of Erdheim-Chester disease. The PFG provides attendees with a place to meet and an opportunity to direct questions and concerns...
by Asmaa Javed | Mar 21, 2025 | News
Join us for a transformative 2-½ day conference bringing together cross-specialty physicians, scientists, patients, and their families from around the world. This unique event focuses on supporting adult histiocytosis patients and providing a comprehensive platform...
