Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) hosts a singular event that brings together physicians, researchers, and care specialists from across disciplines and across borders. The ECDGA Medical Symposium is not just a scientific meeting—it is the...
Title: “Layers of Complexity: ECD Diagnosis and Management in the Presence of Confounding Comorbidities” Time: 1:30 PM – 1:55 PM Location: Bellvitge University Hospital Auditorium As Erdheim-Chester Disease (ECD) becomes more recognized and understood within the...
The Erdheim-Chester Disease Global Alliance (ECDGA) welcomes medical professionals from around the world to the 2025 Annual Medical Symposium on Erdheim-Chester Disease, held in Barcelona at Bellvitge University Hospital. This annual gathering is the only...
Speaker: Eli Diamond, MD Time: 10:50 AM – 11:05 AM Date: May 26, 2025 Patient & Family Gathering For many individuals living with Erdheim-Chester Disease (ECD), the involvement of the brain and eyes can be among the most difficult and frightening complications to...
Speaker: Julien Haroche, MD, PhD Time: 9:35 AM – 9:55 AM Date: May 26, 2025 Patient & Family Gathering In the world of Erdheim-Chester Disease (ECD), few names are more widely respected than Dr. Julien Haroche. For more than two decades, Dr. Haroche has led...
The Patient and Family Gathering is one of the most anticipated events of the year for the Erdheim-Chester Disease community. Each session is carefully selected to offer insight, clarity, and support for individuals living with ECD and the loved ones who stand beside...
