by Asmaa Javed | Mar 21, 2025 | News
Erdheim-Chester Disease (ECD) is a complex and rare condition that can affect multiple organs and systems in the body. From the bones and heart to the kidneys and brain, ECD’s impact is often widespread. Because of this, a team-based, multidisciplinary approach to...
by Asmaa Javed | Mar 21, 2025 | News
Fatigue is one of the most common—and often most frustrating—challenges faced by individuals living with Erdheim-Chester Disease (ECD). This isn’t just feeling tired at the end of a long day. Chronic fatigue associated with ECD can impact nearly every aspect of daily...
by Asmaa Javed | Mar 21, 2025 | News
For over 15 years, the Erdheim-Chester Disease Global Alliance (ECDGA) has been a beacon of hope for patients, families, and researchers dedicated to understanding and treating Erdheim-Chester Disease (ECD). Since our founding in 2009, we have supported more than...
by Asmaa Javed | Mar 21, 2025 | News
Over the past decade and a half, remarkable advancements in Erdheim-Chester Disease (ECD) research have reshaped our understanding of this rare condition. Scientists and medical experts have uncovered critical insights into its genetic drivers, developed new targeted...
by Asmaa Javed | Mar 21, 2025 | News
In less than three months, the global Erdheim-Chester Disease (ECD) community will come together for the 10th Annual ECD Conference in Barcelona. This milestone event unites medical experts, researchers, patients, and families in a shared mission: to advance...
by Asmaa Javed | Mar 21, 2025 | News
Fatigue is one of the most common and challenging symptoms experienced by individuals with Erdheim-Chester Disease (ECD). Unlike typical tiredness, ECD-related fatigue can be persistent and overwhelming, affecting daily activities, work, and overall well-being. While...
