by Asmaa Javed | Jul 29, 2025 | News
We are sharing an opportunity to participate in the University of Alabama at Birmingham (UAB) Survivorship Study—a vital research effort focused on understanding the experiences, challenges, and needs of individuals diagnosed with Erdheim-Chester Disease (ECD). Your...
by Steven May Jr | Jul 24, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG). This marks the 42nd ECD Care Center worldwide and the third recognized...
by Steven May Jr | Jul 19, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the recipient of its 2024 Early Career Investigator Grant: Dr. Priya Marathe, a clinical instructor in pediatric oncology at Memorial Sloan Kettering Cancer Center (MSK). Dr. Marathe will lead a...
by Steven May Jr | Jul 15, 2025 | Featured, News
The 2025 Get Ready to Run, Walk & Roll for Hope Fun Run has officially come to a close, and we are absolutely thrilled to announce that we not only met our fundraising goal… we surpassed it! Thanks to the generosity, enthusiasm, and heart of our incredible...
by Steven May Jr | Jun 17, 2025 | Featured, News
Participating in the ECDGA’s annual Run, Walk & Roll for Hope is powerful on its own—but forming a team can take your involvement to an entirely new level. Whether you’re rallying coworkers, uniting family members, or gathering a group of friends, creating a team...
by Steven May Jr | Jun 17, 2025 | Featured, News
The 2025 Run, Walk & Roll for Hope brings together supporters from all corners of the globe in the fight to raise awareness for Erdheim-Chester Disease (ECD). For those participating virtually, your impact is just as powerful—and with a little creativity and...
