by Steven May Jr | Sep 12, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/09/Realistic_cinematic_video_202509092213_p7lyu.mp4 Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week—wear your stripes! By putting on stripes this week, you’re showing...
by Steven May Jr | Sep 11, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to share that every session from our 2025 Patient & Family Gathering and Medical Symposium—held May 26–27 in vibrant Barcelona—is now available to watch online. Whether you joined us in person or are...
by Steven May Jr | Sep 10, 2025 | News
This Erdheim-Chester Disease Awareness Week, we’re honored to introduce you to Edith and Mike Watters, a remarkable couple whose journey reflects the courage, resilience, and creativity of our community. Edith is living with Erdheim-Chester Disease (ECD), an...
by Steven May Jr | Sep 10, 2025 | News
At the 2025 Erdhem-Chester Disease Medical Symposium in Barcelona, the ECDGA Junior Investigator Award went to Laura Eurelings of Erasmus University Medical Centre, Rotterdam. Her poster, “Anti-IL-6 Therapy in Rare Histiocytic Disorders: Erdheim-Chester and...
by Steven May Jr | Sep 9, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/09/ECD-2nd-edit.mp4...
by Asmaa Javed | Sep 9, 2025 | News
The July 31 Canada Monthly Chat was a truly special event, featuring guest speaker Gary Tobin, who shared his extraordinary journey of resilience and survival after being diagnosed with stage 4 Acral Lentiginous Melanoma. This session was recorded so the broader...
