Created using the Donation Thermometer plugin https://wordpress.org/plugins/donation-thermometer/.$30,000.00Raised $30,000.00 towards the $30,000.00 target.$30,000.00Raised $30,000.00 towards the $30,000.00 target.100.00%In just one week, the ECDGA $30,000 Impact...
We’re already 30% of the way toward unlocking our $30,000 new Impact Challenge match, and it’s all thanks to supporters like you. $25 becomes $50 $50 becomes $100 Every dollar matters. Every dollar helps us spread awareness, fund research, and support patient...
We’re excited to share a new animated short featuring Ziggy the Zebra, the ECD community’s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and...
The holiday season is often filled with celebration, connection, and meaningful traditions. But for individuals living with Erdheim-Chester disease (ECD), this time of year can also bring unique challenges—fatigue, stress, disrupted routines, medical appointments,...
Reminder: Abstract Submissions Close February 1, 2026 The ECD Global Alliance invites clinicians, researchers, and medical professionals to submit abstracts for consideration at the 2026 ECDGA Medical Symposium, taking place on May 1, 2026, at the Marnix E. Heersink...
As 2025 comes to a close, the ECD Global Alliance reflects with gratitude on the strength and generosity of our incredible community. Because of your support, we continue to advance research, provide critical resources for patients and families, and expand awareness...
