The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce that nominations are now open for the prestigious Mark Heaney Memorial Award for Awareness. This annual award commemorates the significant contributions of Dr. Mark Heaney, a renowned...
https://www.erdheim-chester.org/wp-content/uploads/2024/12/IMG_7996-copy.mp4 In a recent short video, Mark Anderson shared an inspiring message encouraging viewers to support the Erdheim Chester Disease Global Alliance (ECDGA). His message underscores the importance...
Represent your country, your state, or your fight in our Virtual Run/Walk/Roll! By wheelchair, bike, or other means, come join us in this virtual event held during ECD Awareness Month (September 9-30). Register today as a part of a team or as an individual....
Uplifting Athletes, a nonprofit organization dedicated to serving the rare disease community, has announced that Dr. Jithma Abeykoon will receive a $20,000 research grant as a member of Uplifting Athletes’ 2023 Young Investigator Draft Class. Dr. Abeykoon was...
Sharing a year of hope with the ECD community! View the 2022 Year-End Newsletter. Over the past two years, the ECD Global Alliance adjusted to the new norms of distancing and travel bans with more online connections and smaller, regional meetings. We have launched a...
