by Asmaa Javed | Mar 21, 2025 | News
Fatigue is one of the most common and challenging symptoms experienced by individuals with Erdheim-Chester Disease (ECD). Unlike typical tiredness, ECD-related fatigue can be persistent and overwhelming, affecting daily activities, work, and overall well-being. While...
by Asmaa Javed | Mar 21, 2025 | News
For those living with Erdheim-Chester Disease (ECD) and their loved ones, finding a supportive community and reliable medical insights can make all the difference. The ECD Patient & Family Gathering is designed to connect, educate, and empower individuals affected...
by Asmaa Javed | Mar 21, 2025 | News
Erdheim-Chester Disease (ECD) is a rare histiocytic disorder that often goes undiagnosed for years due to its varied and complex symptoms. Early recognition by both patients and medical professionals is crucial for timely intervention and improved outcomes. Why Is...
by Asmaa Javed | Mar 21, 2025 | News
Tomorrow is the last day for EARLY BIRD PRICING! 10th Annual Erdheim-Chester Disease International Conference Conference Dates: 26-28 May https://secure.qgiv.com/for/barcelonapatientfamilygathering/event/2024ecdmedicalsymposium-barcelona/ Conference...
by Asmaa Javed | Mar 21, 2025 | News
10th Annual Erdheim-Chester Disease International Patient & Family Gathering Friday is the last day for EARLY BIRD PRICING! Prices increase March 1! Conference Dates: 26 May 2025 Conference Location: Barcelona, Spain Early Bird Pricing Ends: 28 February...
by Asmaa Javed | Mar 21, 2025 | News
Every year, on the last day of February, the global community comes together to recognize Rare Disease Day—a vital initiative that highlights the challenges faced by individuals living with rare conditions. On February 28, 2025, the Erdheim-Chester Disease Global...
